Living with Posterior Cortical Atrophy: Martin Robertson's Journey
Episode Overview
Martin Robertson shares his journey with posterior cortical atrophy (PCA). Discusses the importance of mental health in dementia care. Highlights societal stigma around dementia and the need for better understanding. Emphasises the value of post-diagnostic support. Advocates for involving those living with dementia in research.
You have to laugh at these things.
In this episode of the UK Health Radio Podcast, Pete Hill dives into the often misunderstood world of posterior cortical atrophy (PCA) with guest Martin Robertson. Martin, who was diagnosed with PCA in 2016, shares his journey from initial symptoms to diagnosis, and how he has managed to live a fulfilling life despite the challenges posed by this rare form of dementia.
With a mix of humour and honesty, Martin recounts his experiences dealing with misdiagnoses, the emotional rollercoaster of living with PCA, and the practical steps he took to manage his condition, such as obtaining a power of attorney and moving back to Scotland for better support. Martin's story is both heart-wrenching and inspiring. He talks about the importance of mental health in dementia care and how he keeps his brain active through academic research and volunteering.
He also highlights the need for society to better understand dementia, not just as an old person's disease but as a condition that affects people of all ages. Martin's advocacy for better post-diagnostic support and his involvement in various research projects showcase his determination to make a difference. Pete Hill and Martin also discuss the societal stigma around dementia and the importance of involving those living with the condition in research.
Martin's anecdotes about his sense of humour and his unique approach to life offer a refreshing perspective on living with dementia. This episode is a must-listen for anyone affected by dementia, whether personally or through a loved one, offering both practical advice and emotional support. Why should you listen to this episode? Martin's journey offers valuable insights into living with PCA, the importance of mental health, and the power of staying engaged and active.
His story is a testament to the resilience of the human spirit and a reminder that life can still be meaningful, even in the face of adversity.