Recovery After Stroke
Recovery After Stroke
Some Days I Break Down: Dylan on Recovery from Locked-In Syndrome
Some Days I Break Down: Dylan on Recovery from Locked-In Syndrome
Some Days I Break Down: Dylan on Recovery from Locked-In Syndrome
Monday 23rd June 2025
Dylan Alford shares his inspiring journey from locked-in syndrome to recovery after a brainstem stroke. A story of resilience and hope.
53 minutes
Inspiring
Hopeful
Informative
Compassionate
Supportive
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Episode Overview
- Dylan Alford shares his journey from locked-in syndrome after a brainstem stroke.
- Radiation treatment for a childhood brain tumour increased his stroke risk.
- Emotional awareness and mental health are crucial in stroke recovery.
- Community support plays a significant role in healing and progress.
- Small steps in recovery are still meaningful victories.
"When I was locked in, I couldn't talk for one month."
Imagine waking up one day, unable to move or speak, yet fully aware of your surroundings. That's the chilling reality Dylan Alford faced after suffering a brainstem stroke that led to locked-in syndrome. In this heartfelt episode of 'Recovery After Stroke', Dylan shares his arduous journey from complete paralysis to regaining some independence. His story is one of resilience, as he battles not just the physical limitations but also the emotional and mental toll of his condition.
Dylan recounts how radiation treatment for a childhood brain tumour damaged his blood vessels, making him susceptible to strokes. His latest stroke in 2023 left him locked in for two weeks, a terrifying experience where he could hear and see but couldn't communicate. Over time, with sheer determination and the help of a supportive network, including his wife and fellow stroke survivors, Dylan has made significant progress.
The episode also highlights the importance of emotional awareness and mental health in recovery. Dylan talks candidly about his struggle with PTSD and pseudobulbar affect, conditions that cause unpredictable emotional responses. He finds solace in connecting with others who have faced similar challenges, emphasising the power of community and shared experiences. If you're seeking inspiration or a reminder that small victories are still victories, Dylan's story is a must-listen.
It serves as a beacon of hope for anyone facing their own battles, reminding us that even when progress is slow, it is still progress.