Seeing when you're blindSeeing when you're blind
All In The Mind
Charles Bonnet Syndrome is sometimes called the ‘plaything of the brain’ for the blind and visually impaired. The syndrome isn’t associated with mental illness or dementia, yet people with it are able to ‘see’ things — like little wriggling children in pink and white pyjamas, or a goat riding on a bike through their lounge room.
29:06•2 Aug 2020
Seeing the Unseen: Understanding Charles Bonnet Syndrome
“The brain is not receiving signals, messages from the eyes, it draws upon the memory...and it draws upon these pictures, which are as vivid as can be.”
Imagine 'seeing' children in pink pyjamas or a goat riding a bike in your living room, despite being visually impaired. That's the curious world of Charles Bonnet Syndrome (CBS), the focus of this intriguing episode of 'All In The Mind'. Host Lynne Malcolm takes listeners on a journey into the minds of those experiencing CBS, a condition where vivid hallucinations occur without any link to mental illness or dementia.
The episode kicks off with personal stories from individuals like Ross Brown and Mary Anne-Gabrielle, who share their surreal and often bewildering visual experiences. These aren't mere figments of imagination but rather the brain's way of filling in the gaps when visual input is missing. It's like the brain's version of a 'plaything', conjuring up images that can be both fascinating and unsettling.
Delving into the history, listeners learn about Swiss naturalist Charles Bonnet, who first documented the syndrome in 1760. Despite its long-standing recognition, CBS remains underdiagnosed and misunderstood, often leaving those affected without proper support. The episode also sheds light on potential treatments, ranging from anti-seizure medications to advanced imaging techniques like functional MRI, which help pinpoint the brain areas involved in these hallucinations.
By the end of the episode, listeners gain a deeper appreciation for the brain's complexity and the unique challenges faced by those living with CBS. This episode isn't just about understanding a medical condition; it's about humanizing the experiences of those who navigate this surreal aspect of their reality.

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