Emily Ong: A Journey from Diagnosis to Dementia Advocacy
Episode Overview
Emily Ong shares her personal journey with early onset dementia. The importance of advocacy and support groups in coping with dementia. Challenges faced by women in Asia regarding dementia diagnosis. The role of environmental design in creating supportive spaces. Addressing stigma and raising awareness about dementia globally.
"I had forgotten how to make a very simple thing called French toast."
The 'D' Word Podcast, hosted by Pete Hill, shines a spotlight on the often misunderstood topic of dementia. This episode features the inspiring Emily Ong, a dementia advocate who was diagnosed with early onset dementia at the age of 51. Emily shares her journey from the initial signs, like forgetting how to make French toast, to becoming a board member of Alzheimer's Disease International.
Her story is not just about her diagnosis but also her resilience and determination to advocate for others. Emily candidly discusses the challenges she faced in getting a diagnosis, often dismissed as stress or menopause-related issues. She reflects on the lack of awareness and support for young onset dementia, especially in her home region of Asia. Her advocacy work has led her to connect with global support groups and organisations, providing her with a sense of community and hope.
The conversation touches on the stigma surrounding dementia, particularly for women in Asia, and how societal perceptions can delay diagnosis and support. Emily's work in environmental design for dementia-friendly spaces highlights the importance of creating supportive environments for those living with cognitive impairments. This episode is a compelling listen for anyone interested in understanding the human side of dementia and the power of advocacy.
Emily's story is a testament to the strength found in community and the impact one person can have in raising awareness and fostering change. If you're curious about how personal experiences can drive global advocacy efforts, this episode is a must-listen.