125: The 'D' Word with Pete Hill - Episode 125

125: The 'D' Word with Pete Hill - Episode 125

UK Health Radio Podcast

Phyllis Fair shares her journey with early onset dementia and discusses the Youth in Action Toolkit, empowering children to support those affected by dementia.

InspiringHopefulCompassionateEducationalSupportive

32:1620 Jun 2025

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Kids Leading the Charge: Dementia Advocacy with Phyllis Fair

Episode Overview

  • Kids can understand and support loved ones with dementia.
  • Youth in Action Toolkit educates young supporters.
  • Children break stigma by engaging early with dementia.
  • International interest in translating the toolkit.
  • Collaborative efforts enhance dementia care globally.
Out of the mouths of babes, they're honest. They don't hide, they just tell it the way it is.

Ever wondered how kids view dementia? Pete Hill's 'The D Word' podcast episode introduces Phyllis Fair, a passionate advocate who was diagnosed with early onset dementia at 48. Phyllis shares her inspiring journey and the creation of the Youth in Action Toolkit, designed for young dementia supporters. Collaborating with the Alzheimer's Society of Ontario and other research institutions, this toolkit aims to educate children from ages nine to fifteen about dementia, breaking down stigmas before they even form.

Phyllis recounts how kids, being open-minded and non-judgmental, can grasp the complexities of dementia without the biases often seen in adults. During the episode, Phyllis describes her work with the Dementia Empowerment Network and her experiences working alongside young minds. These children, having family members with dementia, are eager to learn and support their loved ones. The toolkit they've developed not only serves as a resource but also as a testament to their understanding and compassion.

Phyllis talks about the toolkit's design process, highlighting the children's attention to detail and desire for inclusivity. Their efforts have led to international interest, with plans for translation into multiple languages. Through anecdotes and reflections, Phyllis illustrates how young people can be powerful allies in the fight against dementia.

If you're curious about how children can lead the way in dementia advocacy or want to learn more about the toolkit's impact, this episode offers a heartwarming glimpse into the future of dementia care. Tune in for a conversation that might just change your perspective on how we approach this condition.

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