36: Stoma4Life with Raphaela Reeb - Episode 3636: Stoma4Life with Raphaela Reeb - Episode 36
UK Health Radio Podcast
Raphaela Reeb talks with Gozi Onchekwa about her battle with rhabdomyosarcoma, her advocacy for rare diseases, and the importance of early diagnosis.
44:12•18 Feb 2025
Battling Rare Diseases: Gozi Onchekwa's Inspiring Journey
Episode Overview
- Gozi Onchekwa shares her battle with rhabdomyosarcoma during the pandemic.
- Importance of early diagnosis for rare diseases.
- Emotional and psychological impact of living with a rare disease.
- Gozi's advocacy efforts through global platforms like Mrs. Universe and TEDx.
- Encouragement to support rare disease awareness and patient rights.
“If I was to ever survive this, I would make sure that if I could help at least one person know something or give them hope in some way, that I would do it”
In this episode of the UK Health Radio Podcast, host Raphaela Reeb welcomes Gozi Onchekwa, a cancer survivor and advocate for rare diseases. Gozi shares her gripping journey with rhabdomyosarcoma, a rare and aggressive soft tissue cancer, diagnosed during the pandemic. She opens up about her 12-month battle with chemotherapy and multiple surgeries, including a hysterectomy.
Despite the challenges, Gozi emerged stronger, using her experience to raise awareness and educate others about early symptoms and patient rights within the healthcare system. She has taken her advocacy to global platforms, including the Mrs. Universe Pageant and TEDx talks, inspiring many with her resilience and determination. Raphaela and Gozi discuss the importance of early diagnosis, the emotional toll of living with a rare disease, and the power of advocacy.
Gozi's story is a testament to the strength of the human spirit and the importance of persistence in the face of adversity. Tune in to hear Gozi's inspiring journey and learn how you can support rare disease awareness.
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