Mallory Smith's Secret Battle: A Mother's Perspective on Cystic Fibrosis
She understood something really big, and I think her effort to document what was happening and to provide insights was her way of making her mark on the world, and I don't think she expected to die, but I think in the back of her mind there was some underlying understanding...
What would you do if your child faced a relentless, life-threatening illness? Diane Shader-Smith knows this reality all too well. In this episode of 'American Medicine Today', Diane shares the heart-wrenching yet inspiring story of her daughter, Mallory Smith, who documented her 25-year struggle with cystic fibrosis in secret diaries. These personal writings have now been transformed into the poignant documentary 'Salt in My Soul'.
Mallory's journey is not just about battling a chronic illness; it's about resilience, hope, and the power of storytelling. Diane opens up about the emotional rollercoaster of watching her daughter fight against the odds while maintaining a semblance of normalcy. She also discusses the urgent need for more research and funding for phage therapy, a promising yet overlooked treatment for bacterial infections that could have made a difference in Mallory's life.
The episode goes beyond Mallory's personal story to address broader issues in the medical community. Diane talks about the bipartisan Pasture Act, which aims to incentivize companies to invest in phage therapy research and clinical trials. Her advocacy is a call to action for listeners to support innovative treatments that could save lives.
Whether you're dealing with a chronic illness yourself, supporting someone who is, or simply interested in groundbreaking medical discussions, this episode offers a deeply human perspective on the struggles and triumphs of living with cystic fibrosis. Diane's candid reflections and passionate advocacy will leave you both moved and motivated to make a difference.