Steve Johnston: Dad vs. Blindness

Steve Johnston: Dad vs. Blindness

Picture this: your child is losing their sight to an incurable disease, and you're racing against time to find a cure. Steve Johnston knows this struggle all too well. In this heartfelt episode, host Dan Karaty sits down with Steve to talk about his son’s battle with retinitis pigmentosa, a rare condition that's slowly stealing his vision. But Steve isn’t just sitting around feeling sorry for himself; he's taking action in ways that are nothing short of inspiring.

From starting a nonprofit to fund research to training for an Ironman, Steve's journey is a testament to the power of a father's love and the lengths he'll go to for his child. He also opens up about the complexities of co-parenting with his ex-wife and how they’ve put their differences aside for the sake of their son and their cause.

This episode dives deep into the emotional rollercoaster of dealing with a rare disease, balancing professional and personal life, and finding hope in the face of seemingly insurmountable challenges. If you’re looking for a story that blends resilience, community support, and unwavering determination, you won't want to miss this conversation.