The long road to an EDS diagnosisThe long road to an EDS diagnosis
People First Radio
Mark DeVries of Parksville had spent decades visiting doctors and specialists for a variety of symptoms, including joint pains and daily headaches, which he says he was always told were normal. It was only recently that DeVreis, 57, received a diagnosis
45:12•2 Sept 2024
Mark DeVries: Battling Ehlers-Danlos Syndrome
Episode Overview
- Mark DeVries shares his decades-long struggle to get an EDS diagnosis.
- The episode highlights the daily challenges of living with EDS.
- Mark discusses the lack of awareness and support for EDS in the medical community.
- The importance of self-advocacy in managing chronic conditions is emphasised.
- Tammy Statt from EDS Canada Foundation provides additional insights.
“I've been complaining about it my entire life... finally she listened after I just got news that I have six new bulging discs in my lower vertebrae.”
Mark DeVries spent decades grappling with mysterious symptoms like joint pain and daily headaches. Doctors dismissed these as normal, leaving him in the dark until a nurse practitioner finally suggested Ehlers-Danlos syndrome (EDS). This episode of People First Radio dives into Mark's journey, shedding light on the challenges of getting an EDS diagnosis. Mark shares how his life has been a constant battle with pain and misunderstood symptoms, often brushed off by medical professionals.
He talks about his relentless pursuit of answers and the relief of finally having a name for his condition. You'll hear about the daily struggles of living with EDS, from dislocating joints to skin that bruises easily, and the mental toll it takes. Mark also discusses the lack of awareness and support for EDS in the medical community, highlighting the need for better education and resources.
His story is a testament to resilience and the importance of self-advocacy in the face of chronic illness. If you've ever felt unheard by the medical system or know someone struggling with a chronic condition, this episode is a must-listen. It’s a powerful reminder of the strength it takes to keep fighting for your health.
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