UK Health Radio Podcast
UK Health Radio Podcast
19: The Hirschsprung’s Hour with Tom Richard - Episode 19
19: The Hirschsprung’s Hour with Tom Richard - Episode 19
19: The Hirschsprung’s Hour with Tom Richard - Episode 19
Tuesday 7th January 2025
Tom Richard interviews Gemma about her daughter Dorothy's journey with Hirschsprung’s disease, sharing their challenges and triumphs.
47 minutes
Inspiring
Supportive
Informative
Hopeful
Compassionate
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Get the buttons here!Dorothy's Journey: A Mother's Determination Against Hirschsprung’s
Episode Overview
- Recognise the importance of parental intuition in identifying health issues.
- Advocate strongly for your child's health needs.
- Understand the emotional rollercoaster of receiving a rare disease diagnosis.
- Learn about the medical procedures involved in treating Hirschsprung’s disease.
- See how a positive outlook can help turn challenges into opportunities.
You've got to advocate for your children. They can't speak for themselves.
In this heartwarming episode of the UK Health Radio Podcast, Tom Richard sits down with Gemma, a mother whose daughter, Dorothy, was diagnosed with Hirschsprung’s disease. Hirschsprung’s affects 1 in 5000 babies in the UK and involves the large bowel where ganglion cells do not form properly. Gemma shares her emotional journey from Dorothy's birth to her diagnosis and the rollercoaster ride that followed.
She talks about the initial signs that something was wrong, the numerous hospital visits, and the eventual diagnosis that changed their lives. Gemma's story is filled with moments of fear, hope, and resilience as she navigates the challenges of having a child with a rare condition. Her determination to advocate for Dorothy and ensure she received the best care possible is truly inspiring.
Throughout the episode, Tom and Gemma discuss the importance of parental intuition and advocating for your child's health, even when faced with uncertainty. Gemma's positive outlook and determination to turn challenges into opportunities shine through as she shares how Dorothy is now thriving, enjoying activities like gymnastics and rugby. This episode is a testament to the strength and resilience of parents and children dealing with rare conditions.
It’s a must-listen for anyone looking for a story of hope, determination, and the power of advocacy.