61: The Hirschsprung’s Hour with Tom Richard - Episode 6161: The Hirschsprung’s Hour with Tom Richard - Episode 61
UK Health Radio Podcast
Jess shares her experiences living with Hirschsprung's disease, highlighting the importance of community support, humour, and self-employment in managing her condition.
42:24•16 Dec 2025
Living Boldly with Hirschsprung's: Jess's Journey
Episode Overview
- Community support can make living with a chronic condition more manageable.
- Humour helps in dealing with serious health challenges.
- Self-awareness is crucial for managing symptoms effectively.
- Traditional work environments may not always accommodate health needs.
- Self-employment offers flexibility for those with chronic conditions.
“Having a stoma bag isn't the norm for most people, but it's the norm for me, and that's what's important.”
What makes a recovery story truly inspiring? Tune into this episode of 'The Hirschsprung’s Hour' with Tom Richard as he chats with Jess about her journey living with Hirschsprung’s disease and the challenges that come with it. Jess shares her personal story, offering a glimpse into her world, where a supportive community plays a pivotal role. You'll hear about her friendship with Josh, another person with a stoma, which has been a lifeline in navigating daily life with the condition.
Their camaraderie brings lightness and understanding, making the abnormal feel normal. Jess talks candidly about the importance of humour and naming her stoma 'Steve', which helps to humanise her medical journey. The episode also highlights the often-overlooked connection between mental and physical health, with Jess explaining how stress can exacerbate her symptoms. The conversation takes a turn towards the professional realm as Jess discusses the challenges she faced in traditional work environments due to her health needs.
Her decision to become a self-employed nail technician showcases resilience and adaptability, reminding us that living with a chronic condition doesn't limit one's potential for success. Whether you're someone living with Hirschsprung’s or just curious about real-life stories of resilience, this episode offers insights into the power of community, self-awareness, and finding joy in the little things. It’s a testament to living life on your own terms despite the hurdles.
How do you find strength in your journey to sobriety or health? Join Jess and Tom for an honest conversation filled with laughter, insights, and hope.

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