UK Health Radio Podcast
UK Health Radio Podcast
7: The Hirschsprung’s Hour with Tom Richard - Episode 8
7: The Hirschsprung’s Hour with Tom Richard - Episode 8
7: The Hirschsprung’s Hour with Tom Richard - Episode 8
Tuesday 22nd October 2024
Join Tom Richard as he interviews Nicole and Benjamin Perry, who share their inspiring journey with Hirschsprung’s disease on 'The Hirschsprung’s Hour'.
47 minutes
Inspiring
Informative
Hopeful
Compassionate
Encouraging
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Mindfulness & Emotional Wellbeing
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Get the buttons here!Facing Hirschsprung’s: Nicole and Benjamin Perry’s Journey
Episode Overview
- Importance of medical advocacy in receiving accurate diagnoses.
- Challenges and emotional impact of living with Hirschsprung’s disease.
- Support systems like REACH can provide crucial assistance.
- Balancing chronic illness with everyday activities and sports.
- The power of community and perseverance in overcoming medical challenges.
"Yesterday, you guys wanted to press charges against me, and today, my son has to get to an emergency room because he could die."
In this episode of 'The Hirschsprung’s Hour', host Tom Richard welcomes Nicole and Benjamin Perry, who share their compelling journey with Hirschsprung’s disease. Benjamin, diagnosed at just 22 months old, has faced numerous challenges but continues to inspire with his resilience and positivity. Nicole recounts the early days of Benjamin's diagnosis, the initial misdiagnoses, and the emotional rollercoaster that followed.
Her determination to seek the right medical care, despite being accused of Munchausen by proxy, highlights the importance of advocacy in medical settings. The episode takes you through Benjamin's multiple surgeries, including emergency procedures and long hospital stays. Nicole discusses the support they received from the REACH organisation and how it became a pivotal part of their lives. The episode is not just about the struggles; it's also about triumphs.
Benjamin's participation in sports and his dream of becoming a professional baseball player showcase his indomitable spirit. Tom Richard's empathetic interviewing style brings out the raw emotions and genuine experiences of his guests. He also touches on the broader impact of Hirschsprung’s awareness and how community support can make a significant difference. This episode is a must-listen for anyone seeking inspiration and understanding about living with a chronic condition.
By sharing their story, Nicole and Benjamin Perry offer hope and encouragement to others facing similar challenges. Their journey underscores the power of perseverance and the importance of finding a supportive community. Tune in to hear their incredible story and gain insights into the realities of living with Hirschsprung’s disease.