UK Health Radio Podcast
UK Health Radio Podcast
30: The Hirschsprung’s Hour with Tom Richard - Episode 30
30: The Hirschsprung’s Hour with Tom Richard - Episode 30
30: The Hirschsprung’s Hour with Tom Richard - Episode 30
Tuesday 8th April 2025
Join Tom Richard as he talks to Isabel Schnadig about REACH, a charity for Hirschsprung’s disease, and her journey from diagnosis to advocacy.
47 minutes
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Get the buttons here!REACHing Out: A Journey Through Hirschsprung’s Disease with Isabel Schnadig
Episode Overview
- Isabel Schnadig shares her family's experience with Hirschsprung’s disease and Down syndrome.
- The creation and growth of REACH, a charity dedicated to Hirschsprung’s disease.
- The importance of community support for families dealing with rare diseases.
- Educational resources and books aimed at helping families understand Hirschsprung’s disease.
- Future goals for REACH in terms of research, education, and advocacy.
Sometimes you need the collective in order to heal or to get over hardship
Tom Richard is back with another heartfelt episode of The Hirschsprung’s Hour on UK Health Radio. This time, he sits down with Isabel Schnadig, the co-founder of REACH, the largest Hirschsprung’s charity in the world. Isabel shares her family's journey with Hirschsprung’s disease, starting with the diagnosis of their son who also has Down syndrome. She discusses the isolation and challenges they faced, and how those experiences led to the creation of REACH in 2011.
The charity focuses on research, education, and advocacy for families affected by Hirschsprung’s disease. Isabel also talks about her books, which aim to help families understand and cope with the condition in a more relatable and less daunting way. The conversation is filled with personal anecdotes, making it both informative and touching. Whether you’re directly affected by Hirschsprung’s or just curious to learn more, this episode offers a wealth of knowledge and inspiration.