30: The Hirschsprung’s Hour with Tom Richard - Episode 3030: The Hirschsprung’s Hour with Tom Richard - Episode 30
UK Health Radio Podcast
Tom Richard talks with Isabel Schnadig about her journey with Hirschsprung’s disease, founding REACH, and supporting affected families.
46:39•8 Apr 2025
REACHing Out: A Journey Through Hirschsprung’s Disease with Isabel Schnadig
Episode Overview
- Isabel Schnadig shares her family's experience with Hirschsprung’s disease and Down syndrome.
- The creation and growth of REACH, a charity dedicated to Hirschsprung’s disease.
- The importance of community support for families dealing with rare diseases.
- Educational resources and books aimed at helping families understand Hirschsprung’s disease.
- Future goals for REACH in terms of research, education, and advocacy.
“Sometimes you need the collective in order to heal or to get over hardship”
Tom Richard is back with another heartfelt episode of The Hirschsprung’s Hour on UK Health Radio. This time, he sits down with Isabel Schnadig, the co-founder of REACH, the largest Hirschsprung’s charity in the world. Isabel shares her family's journey with Hirschsprung’s disease, starting with the diagnosis of their son who also has Down syndrome. She discusses the isolation and challenges they faced, and how those experiences led to the creation of REACH in 2011.
The charity focuses on research, education, and advocacy for families affected by Hirschsprung’s disease. Isabel also talks about her books, which aim to help families understand and cope with the condition in a more relatable and less daunting way. The conversation is filled with personal anecdotes, making it both informative and touching. Whether you’re directly affected by Hirschsprung’s or just curious to learn more, this episode offers a wealth of knowledge and inspiration.
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