UK Health Radio Podcast
UK Health Radio Podcast
16: The Hirschsprung’s Hour with Tom Richard - Episode 16
16: The Hirschsprung’s Hour with Tom Richard - Episode 16
16: The Hirschsprung’s Hour with Tom Richard - Episode 16
Tuesday 17th December 2024
Join Tom Richard as he talks to Robin Taylor about her daughter's battle with Hirschsprung’s disease, highlighting resilience, support systems, and medical advocacy.
41 minutes
Inspiring
Hopeful
Informative
Supportive
Honest
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Mindfulness & Emotional Wellbeing
Spiritual & Personal Growth Journeys
Mindful Recovery
Entrepreneurship for Personal Growth
Navigating Intimate Relationships
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Get the buttons here!A Mother's Journey: Battling Hirschsprung’s Disease with Resilience
Episode Overview
- Robin Taylor shares her challenging pregnancy during COVID-19.
- Charlie Grace's diagnosis with Hirschsprung’s disease at three days old.
- The importance of finding accurate medical information and support.
- Role of online communities in providing support and guidance.
- The impact of Ronald McDonald House Charities on families.
We hadn't given up, but we were open to however baby number three was going to come... and then it happened in God's timing.
In this episode of The Hirschsprung’s Hour, Tom Richard sits down with Robin Taylor, an entrepreneur and fellow REACH HD ambassador, to discuss her journey with her daughter Charlie Grace, who was diagnosed with Hirschsprung’s disease. Robin shares the emotional rollercoaster of trying for a third child for nearly three years, only to discover she was pregnant during the challenging times of COVID-19. Her pregnancy was fraught with complications, including being a COVID long-hauler and experiencing placenta previa.
Despite these challenges, Robin's story is one of resilience and hope. She details the moment of shock when Charlie Grace started showing symptoms just days after birth and the subsequent diagnosis of Hirschsprung’s disease. Robin recounts the initial misinformation from doctors about the long-term effects of the surgery and the relentless pursuit of answers that led them to Nationwide Children's Hospital and Dr. Wood.
The episode highlights the importance of support systems, both online and in-person, as Robin found solace in Facebook groups and eventually in the expertise of Dr. Wood. She also speaks highly of the Ronald McDonald House Charities, which provided a much-needed sanctuary during their hospital stays. The conversation is heartfelt and informative, shedding light on the realities of living with Hirschsprung’s disease and the power of community support.
Robin's story is a testament to the strength and determination of parents advocating for their children's health. Don't miss this inspiring episode filled with valuable insights and personal anecdotes that underscore the importance of perseverance and finding the right medical support.