Simone Riss on Raising Awareness Through 'Oscar the Unstoppable'
Episode Overview
Simone Riss shares her journey with her son Oscar's Hirschsprung’s diagnosis. The impact of adopting a low FODMAP diet on Oscar's health. The emotional highs and lows of managing a rare condition. Creating 'Oscar the Unstoppable' to raise awareness and provide comfort. The importance of community and support for families dealing with Hirschsprung’s.
For him to see himself in print and know that he is being seen and heard in that space, then that's goal achieved
In this episode of The Hirschsprung’s Hour, Tom Richard sits down with Simone Riss, the author of 'Oscar the Unstoppable'. Simone shares her heartfelt journey of raising her son, Oscar, who was diagnosed with Hirschsprung’s disease shortly after birth. The episode kicks off with Simone recounting the early days of Oscar’s life, detailing the initial diagnosis and the whirlwind of emotions that followed.
She speaks candidly about the challenges they faced, from the anxiety of waiting for biopsy results to the relief and trepidation of Oscar's surgery day. Listeners will be moved by her story of resilience and determination as she navigates the complexities of Hirschsprung’s disease, balancing medical interventions with everyday life. Simone also discusses how they managed Oscar's condition through diet changes, specifically adopting a low FODMAP diet, which significantly improved his health.
This episode is not just about medical procedures; it’s about a mother’s unwavering love and her quest to ensure her child leads a fulfilling life despite the odds. Tom and Simone’s conversation is both informative and inspiring, offering hope to other parents dealing with similar conditions. By sharing Oscar’s story, Simone aims to provide comfort and a sense of community to families affected by Hirschsprung’s disease.
Tune in to hear about their journey, the creation of 'Oscar the Unstoppable', and the importance of raising awareness about this rare condition. Whether you're a parent, a healthcare professional, or someone interested in real-life stories of overcoming adversity, this episode is a must-listen.